Current news 2010-03-13 5:00 pm

We had what they call a "Family Consult" with the doctors in Maggie's
team earlier this evening and got a little clearer picture of what our
precious girl is fighting, at least in some areas.

She is NOT dealing with a severe chromasomal abnormality as has been
speculated in the past. Her tests for the trisomy variants all came
back negative, which is a huge praise!

She is NOT dealing with either of the "Walker" named syndromes -
another huge praise!

The acidosis that she is dealing with, however, has become the
dominant concern. The easily fixable causes of acidosis (infection,
vitamin deficiency, etc) are being ruled out for now due to the
persistence of her condition. The current thinking now is that the
cause of the acidosis may also be the underlying cause of the majority
of her other issues. It's beginning to look like some sort of
systemic metabolic issue, many of which are untreatable.

Tests are being run, but the tests with quick results have all come
back negative at this point. At least this rules out a few things and
gets us closer to knowing what's going on. Results for the current
round of tests won't be known until later in the week, but they are
relatively confident that they can keep her stabilized through the
testing.

As a result of the number of samples needed for the various tests, she
is beginning to run low on red blood cells and is likely to need a
blood transfusion later tonight.

Prayer needs:
Please pray that the blood transfusion goes well.
That the tests would reveal a treatable cause for the acidosis.
For peace and wisdom for us as we discuss treatment options with the
doctors and neurosurgeons.
We know our God is far greater than we can imagine or concieve, and we
are praying that He would reveal Himself in an astounding and amazing
way and heal our precious pearl.

Layne