Day 2

AJ got to hold Maggie for about an hour and a half late last night and we saw some smiles this morning.  AJ is up walking around and recovering really well.

Maggie is generally doing well, too.  Her acidosis is stable, not going up or going down, but they still don't know a reason for it. There are a bunch of tests being run, but it's going to take a few days before we get results from them. 

After looking at the MRI, the neurosurgery team thinks that Maggie is not dealing with either the Dandy-Walker or Walker-Warburg syndromes, but rather something called aqueduct stenosis which is an obstruction of the flow of the cerebral fluid, and is the apparent cause of the excess fluid on the brain. There are some treatment options available, and we will be discussing those with the neurosurgery team when we talk to them hopefully later today.   

We are so grateful for the time we've already had with Maggie.  She is such a blessing and such a beautiful  example of God's artistry!  

 

Please pray that the doctors would be able to find the root cause of the acidosis and then that they would be able to treat it effectively and eliminate it. Please also pray that we and the doctors would have wisdom in finding a course of treatment for the stenosis.    

Layne